New Article Published on Health Care Self-Advocacy

My article “Through the Land of Oz: Self-Advocacy in Today’s Health Care System” was just published in the Society for Participatory Medicine’s e-Patient.net blog. It tells the story of my daughter Hilary’s heart valve repair surgery, and how she and I had to advocate for her treatment repeatedly with our HMO, and ultimately, with the State Board of Managed Health Care. Here’s an excerpt: